Resources for Health care Providers
Thank you for visiting the NADF website and for your interest in adrenal disease. We are pleased to offer our HCP partners the information needed to ensure the most optimal care and outcomes for your patients affected by these rare conditions. We welcome you to download, print and share these resources with your patients and their families, as well as your colleagues across endocrinology, primary care, pediatrics, and emergency medicine. We also invite you to become a professional member of NADF to help us further our mission to enhance the quality of life for those with adrenal disease.
Disease Information
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Primary Adrenal Insufficiency, also called Addison’s disease, is a severe or total deficiency of the hormones made in the adrenal cortex, caused by its destruction.
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Secondary adrenal insufficiency is due to the absence of the normal stimulation to the adrenal cortex from a lack of ACTH. This results in a partial or total deficiency of cortisol, but often a normal or near normal production of aldosterone.
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This article focuses on children who present with adrenal insufficiency either as a newborn or in childhood. It highlights the causes, symptoms and treatments to children specifically.
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Congenital adrenal hyperplasia, also called CAH, is a group of genetic disorders in which the two adrenal glands do not work properly.
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Cushing’s syndrome is a disease caused by an excess of cortisol production or by excessive use of cortisol or other similar steroid (glucocorticoid) hormones.
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A very common finding using imaging of the chest and abdomen with CT and MRI is an unsuspected adrenal mass with a diameter of more than 1 cm, now referred to as an adrenal incidentaloma.
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Primary aldosteronism is a disease caused by an excess production of the normal adrenal hormone aldosterone. This hormone is responsible for sodium and potassium balance, which then directly controls water balance to maintain appropriate blood pressure and blood volume.
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X-linked adrenoleukodystrophy (ALD) is an inherited male-limited disorder that can affect the nervous system and the adrenal glands. Its prevalence is estimated at about 1 in 15,000-20,000 individuals, and has been diagnosed more often since the advent of newborn screening for ALD.
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Pheochromocytomas (PCCs) are tumors of the chromaffin cells that arise within the adrenal medulla. They belong to a group of diseases termed neuroendocrine tumors (NETs).
Diagnostic Resources
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**Diagnostic materials to come**
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**Diagnostic materials to come**
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**Diagnostic materials to come**
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**Diagnostic materials to come**
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**Diagnostic materials to come**
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**Diagnostic materials to come**
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**Diagnostic materials to come**
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**Diagnostic materials to come**
ADRENAL CRISIS PREVENTION AND EMERGENCY INTERVENTION RESOURCES
Adrenal crises can be fatal and may occur in anyone with Primary, Secondary, or Pediatric Insufficiency, Congenital Adrenal Hyperplasia, Adrenoleukodystrophy, and patients with Cushing’s currently working with clinicians to appropriately balance adrenal replacement. Adrenal crises can often be avoided if patients and families are empowered to updose cortisol replacement when ill, or when having a physical or emotional stress inducing event. Outcomes can also be improved if patients have emergency injections on hand to utilize under the standing instruction or telehealth care of their endocrinologist, or as a preemptive step prior to heading to the emergency department.
ADRENAL CRISIS PREVENTION RESOURCES
ADRENAL CRISIS EMERGENCY INTERVENTION RESOURCES
Free CE Sponsored by NADF & Our partners
“PHM: Adrenal Insufficiency” - Podcast
Free CE for Healthcare Providers
Target Audience: This activity is directed to physicians who take care of hospitalized children, medical students, nurse practitioners, and physician assistants working in the emergency room, intensive care unit, or hospital wards.
Objectives: Upon completion of this activity, participants should be able to:
Review symptoms and pathophysiology of primary vs secondary adrenal insufficiency.
Review management of both primary and secondary adrenal insufficiency.
Review workup of both primary and secondary adrenal insufficiency and review adrenal crisis.
Course Directors:
Tony R. Tarchichi MD — Associate Professor, Department of Pediatrics, Children's Hospital of Pittsburgh of the University of Pittsburgh Medical Center (UPMC.) Paul C. Gaffney Division of Pediatric Hospital Medicine.
Selma Witchel MD- Professor Pediatrics, University of Pittsburgh School of Medicine
Maria G. Vogiatzi MD - Professor of Pediatrics, Children's Hospital of Philadelphia, University of Pennsylvania School of MedicineAlexandra Ahmet MD - Associate Professor of Pediatrics at the University of Ottawa (Canada), Division Chief for pediatric endocrinology at the Children’s Hospital of Eastern Ontario in Ottawa Canada
Accrediation Statement: In support of improving patient care, the University of Pittsburgh is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.
To Listen: pedhospmed.libsyn.com/website/adrenal-insufficiency
"Recognizing and Managing Adrenal Crisis in the Field with NADF"
A free webinar from Prodigy EMS and NADF - Free CE for EMS Clinicians
Experts in endocrinology and emergency care guide attendees through real-life case studies and practical strategies for managing adrenal crises in the field. Attendees will gain insights into the nuances of glucocorticoid and mineralocorticoid deficiencies, fluid resuscitation protocols, and the administration of life-saving steroids—whether in the form of carried medications or assisting with patient-provided solutions.
Speakers: Christopher Galton, MD; Mitchell Geffner, MD; Vanessa O’Rourke
To view: http://link.prodigyems.com/nadf (free account required for viewing)