​USA – Other Adrenal Disease Groups & Resources

The links on this page will take you to those web sites.
The first group of contacts are general topic organizations.
The following groups are alphabetic by type of disease.
Thank you for visiting the National Adrenal Diseases Foundation!
​

ACC (Lets Cure ACC)
​Adrenal Cancer
International
LetsCureACC.com/

ALD Connect
For individuals with X-linked adrenoleukodystrophy (ALD)
aldconnect.org
​
ATAC Research Fund
Advancing Treatments for Adrenocortical Carcinoma
c/o TGen Foundation
adrenalcancer.org

Autoimmune Association
Clinton Township, Michigan
autoimmune.org

American Thyroid Association
Falls Church, VA
thyroid.org
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APS Type 1
(APS Type 1) Autoimmune Polyglandular Syndrome Type 1, also known as (APECED) Autoimmune polyendocrinopathy-candidiasis-ectodermal dystrophy.
APStype1.org

CARES Foundation, Inc.
Congenital Adrenal Hyperplasia support
Millburn, New Jersey
caresfoundation.org

Center for Adrenal Disorders at
Brigham and Women’s Hospital
Boston, Massachusetts
Center for Adrenal Disorders

Cushing’s Support and Research Foundation
Boston, Massachusetts
csrf.net

Give an Hour
Clarksburg Maryland
Improving Mental Health in the Community
giveanhour.org

MAGIC Foundation for Children’s Growth
Supporting Children with Rare Diseases
Oak Park Illinois
magicfoundation.org

MAGIC Foundation Facebook pages:
For parents of Cushing’s children
facebook.com/TheMAGICFoundation/

​Med Help International
Information and professional medical support
Library & Specialty Medical Forums
medhelp.org 

​​National Organization for Rare Disorders (NORD)
Danbury, Connecticut
rarediseases.org

Pheo Para Alliance (PPA)
A patient-run group for people living with pheochromocytoma and paraganglioma.
Kokomo, Indiana
pheopara.org

Pituitary Network Association
Thousand Oaks, California
pituitary.org

Primary Aldosteronism Foundation
Phoenix, Arizona
primaryaldosteronism.org

The Adrenoleukodystrophy Foundation
Slidell, Louisiana
aldfoundation.org

The EPIC Foundation
The EPIC foundation provides support, advocacy, education and tools to people who are affected by chronic illness.
epictogether.org

The NIH Online Mendelian Inheritance in Man (OMIN)
provides an excellent summary of all known genetic diseases with literature citations.
Online Mendelian Inheritance in Man

US Department of Health and Human Services
The Agency for Healthcare Research & Quality (AHRQ)
Lead Federal agency charged with improving the quality, safety, efficiency, and effectiveness of health care for all Americans.
ahrq.gov

US National Institute of Health – Library of Medicine
nlm.nih.gov

US National Institute of Health – Genetic and Rare Information Center (GARD)
Bethesda, Maryland
rarediseases.info.nih.gov
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VHL (von Hippel-Lindau) Alliance
Boston, Massachusetts
vhl.org