The National Adrenal Diseases Foundation informs, educates, and supports those with adrenal disease and their families to improve their quality of life.

Adrenal Diseases Survey

NADF humbly requests that all physicians and healthcare professionals take 5-10 minutes out of their busy schedules to take an important survey.

We have teamed up with Opinion Health, a healthcare research agency based in London, UK, to conduct a survey on adrenal diseases, with an emphasis on adrenal insufficiency, for North America. This survey is designed to better understand current diagnosis and management of adrenal insufficiency. The results will be used to raise disease awareness and improve patient “quality of life”. Our work must be led and informed by the experiences and expert views of North American healthcare professionals.

This study is conducted in accordance with all relevant codes of conduct regarding anonymity, confidentiality, and ethical practice. It is also fully compliant with the Data Protection Act. Any information you disclose will be treated in the strictest confidence and the results are pooled so no answers are attributable to any individual. You have the right to withdraw from the survey at any time during the interview process and to withhold information as you see fit.
Click here to go to survey

American Autoimmune Related Diseases Association (AARDA) Survey

This Affordable Care Act survey was developed by AARDA.
Click here to go to survey

NOTICE

Pfizer, the manufacturer of Solu-Cortef®, in the convenient “acto-vials”, has removed the preservatives from their product, so have been issued a new NDC number by the FDA. The number is 0009001103.

This NDC number change has apparently made it difficult for pharmacies to find the product in their computer systems, with the result of their informing some adrenal insufficient patients that it is no longer available for prescription.

We have created this form [PDF] to inform you and your pharmacy that the product is still available for prescription.

If your pharmacy is having trouble obtaining these products, please instruct them to call Pfizer’s Customer Service at 1(800) 533-4535.

Other possible contact numbers for Pfizer are 1(800) 438-1985 or patient services at 1(888) 691-6813.

Please feel free to make copies of this notice and pass it on to your pharmacy/s. Maybe it will help you avoid the misunderstanding and resulting aggravation some other people have experienced.

Flu Vaccinations

Dr. Margulies’ Flu Vaccinations Recommendation

NADF Medical Director Paul Margulies, MD, FACE, FACP recommends that all adrenal insufficient patients (Addison’s disease, 2ndary adrenal insufficiency, congenital adrenal hyperplasia, adrenomyeloneuropathy, et al.) get both the H1N1 (a.k.a. Swine Flu) vaccination when it is available (in early October, is being reported), as well as their regular yearly flu vaccination.

Vital

Potentially Life-Preserving
Information Packet for Adrenal Insufficient
Patients (including
Addison’s disease)
please download.

click for zip file

click for self-extracting file

(self-extracting file is for PC computers that do not have a zip program.
All you have to do is
double-click on the file
you download to open)

Vital

Potentially Life-Preserving
Information Packet for
Congenital Adrenal
Hyperplasia (CAH) Patients
please download.

click for zip file

click for self-extracting file

(self-extracting file is for PC computers that do not have a zip program.
All you have to do is
double-click on the file
you download to open)