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April 2014 is the 2nd Annual Adrenal Disease Awareness Month.
Please check out our calendar and see what is going on in honor of this auspicious month. You can help us raise awareness by wearing our t-shirts and telling people about adrenal disease. Thank you for getting on-board!

In memory of Mary Elizabeth Galloway

Mary Elizabeth Galloway, 11-3-54- 3-14-14. She was diagnosed with Addison's Disease in 1998 and fought a very long and courageous battle with it. She was married to the love of her life, Ronny Galloway. She had two sons, Ray (daughter in law Laurie) and Reggie, with two grand children
Zane and Lynnley Rae.

 

Or: Download donation slip here

Adrenal Diseases Survey

NADF humbly requests that all physicians and healthcare professionals take 5-10 minutes out of their busy schedules to take an important survey.
We have teamed up with Opinion Health, a healthcare research agency based in London, UK, to conduct a survey on adrenal diseases, with an emphasis on adrenal insufficiency, for North America. This survey is designed to better understand current diagnosis and management of adrenal insufficiency. The results will be used to raise disease awareness and improve patient "quality of life". Our work must be led and informed by the experiences and expert views of North American healthcare professionals.

This study is conducted in accordance with all relevant codes of conduct regarding anonymity, confidentiality, and ethical practice. It is also fully compliant with the Data Protection Act. Any information you disclose will be treated in the strictest confidence and the results are pooled so no answers are attributable to any individual. You have the right to withdraw from the survey at any time during the interview process and to withhold information as you see fit.

Click here to go to survey

American Autoimmune Related Diseases Association (AARDA) Survey

This Affordable Care Act survey was developed by AARDA. The data will be used during the Autoimmune Diseases Awareness Month in March.

Click here to go to survey

Adrenal Diseases Survey

NADF humbly requests that all physicians and healthcare professionals take 5-10 minutes out of their busy schedules to take an important survey.
We have teamed up with Opinion Health, a healthcare research agency based in London, UK, to conduct a survey on adrenal diseases, with an emphasis on adrenal insufficiency, for North America. This survey is designed to better understand current diagnosis and management of adrenal insufficiency. The results will be used to raise disease awareness and improve patient "quality of life". Our work must be led and informed by the experiences and expert views of North American healthcare professionals.

This study is conducted in accordance with all relevant codes of conduct regarding anonymity, confidentiality, and ethical practice. It is also fully compliant with the Data Protection Act. Any information you disclose will be treated in the strictest confidence and the results are pooled so no answers are attributable to any individual. You have the right to withdraw from the survey at any time during the interview process and to withhold information as you see fit.

Click here to go to survey

Please connect with us. Click here.

 

green November 2010

Question and Answer Search

NADF has placed the Question and Answer section of their Newsletter "NADF News" for the years 2004 to Present in a search engine for easy reference.  Click here to reference this feature:

Question and Answer Search

 

green September 2010

Dr. Margulies' Flu Vaccinations Recommendation
Influenza season is coming fast upon us, and NADF Medical Director Paul  Margulies, MD, FACE, FACP recommends that all adrenal insufficient patients (Addison’s disease, 2ndary adrenal insufficiency, congenital adrenal hyperplasia, adrenomyeloneuropathy, et al.) get both the H1N1 (a.k.a. Swine Flu) vaccination when it is available (in early October, is being reported), as well as their regular yearly flu vaccination.

 

April 2010

Boston Marathon Fundraiser for NADF.

Jay Ross ran in the Boston Marathon on April 19, 2010 in memory of his sister, Jill Marie Ross.  Proceeds from the fundraiser were donated to NADF.  This flyer tells the story of his sister's death due to ignorance of Addisons disease by a prescribing physician.


Check Out This Video

December 2009

Hair Cortisol Study

The Hair Cortisol study announced here last July has come to an end.  The study was done by Dr. Stan Van Uum in London Ontario Canada.  Dr. Uum sends his thanks to those that contributed to the study.  They received queries from almost 200 interested patients and more than 100 participated from all across North America.  They are now analyzing the data and the results should be out shortly.

 


Results of Survey for Development of Dual-Release Hydrocortisone

(Many NADF members were involved and
NADF's 1997 North American Survey is cited as a reference.)

Here is a link to a survey. Click here

 


Contact NADF  with suggestions or contributions for articles or content

Contact the Webmaster  if you have technical difficulties navigating our site

 

What we do

Publish a quarterly newsletter.


Publish, print and mail adrenal disease literature and information to all who request it.


Provide emotional support for those suffering from adrenal disease.


 

Read about Juan Miguel's story here.

 

NADF is a member of the National Organization for Rare Disorders - Click to view the NORD website

 

 

Vital

Potentially Life-Preserving Information Packet for Adrenal Insufficient Patients (including Addison's disease) please download.

click for zip file

click for self-extracting file

(self-extracting file is for PC computers that do not have a zip program. All you have to do is double-click on the file you download to open)

Vital

Potentially Life-Preserving Information Packet for Congenital Adrenal Hyperplasia (CAH)
Patients - please download.

click for zip file

click for self-extracting file

(self-extracting file is for PC computers that do not have a zip program. All you have to do is double-click on the file you download to open)

NOTICE

Pfizer, the manufacturer of Solu-Cortef®, in the convenient "acto-vials", has removed the preservatives from their product, so have been issued a new NDC number by the FDA. The number is 0009001103.
This NDC number change has apparently made it difficult for pharmacies to find the product in their computer systems, with the result of their informing some adrenal insufficient patients that it is no longer available for prescription.
We have created this form [PDF] to inform you and your pharmacy that the product is still available for prescription.
If your pharmacy is having trouble obtaining these products, please instruct them to call Pfizer's Customer Service at 1(800) 533-4535.
Other possible contact numbers for Pfizer are 1(800) 821-7000 or patient services at 1(888) 691-6813.
Please feel free to make copies of this notice and pass it on to your pharmacy/s. Maybe it will help you avoid the misunderstanding and resulting aggravation some other people have experienced.


NADF does not engage in the practice of medicine, is not a medical authority, and does not claim medical knowledge.
In all cases, NADF recommends that you consult your own physician regarding any course of treatment or medication.

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