The National Adrenal Diseases Foundation informs, educates, and supports those with adrenal disease and their families to improve their quality of life.
NADF will be Participating in an Autoimmune Research Registry (ARNet)
NADF will participate in the Autoimmune Research Registry, ARNet, a network of autoimmune disease advocacy organizations that will foster research into autoimmune, adrenal diseases, and related autoimmune conditions. The first goal of ARNet will be to reduce the time it takes to diagnose these diseases.
Click here for details.
Dr. Margulies’ Flu Vaccinations Recommendation
NADF Medical Director Paul Margulies, MD, FACE, FACP recommends that all adrenal insufficient patients (Addison’s disease, secondary adrenal insufficiency, congenital adrenal hyperplasia, adrenomyeloneuropathy, et al.) get their regular yearly flu vaccination.
The Face of Addison’s Disease
This is an awareness video published by LWA Support Group on YouTube. We need your help to make sure that nobody else dies unnecessarily..
Click here to view this video
Adrenal Diseases Survey
NADF humbly requests that all physicians and healthcare professionals take 5-10 minutes out of their busy schedules to take an important survey.
We have teamed up with Opinion Health, a healthcare research agency based in London, UK, to conduct a survey on adrenal diseases, with an emphasis on adrenal insufficiency, for North America. This survey is designed to better understand current diagnosis and management of adrenal insufficiency. The results will be used to raise disease awareness and improve patient “quality of life”. Our work must be led and informed by the experiences and expert views of North American healthcare professionals.
This study is conducted in accordance with all relevant codes of conduct regarding anonymity, confidentiality, and ethical practice. It is also fully compliant with the Data Protection Act. Any information you disclose will be treated in the strictest confidence and the results are pooled so no answers are attributable to any individual. You have the right to withdraw from the survey at any time during the interview process and to withhold information as you see fit.
Click here to go to survey
American Autoimmune Related Diseases Association (AARDA) Survey
This Affordable Care Act survey was developed by AARDA.
Click here to go to survey
Pfizer, the manufacturer of Solu-Cortef®, in the convenient “acto-vials”, has removed the preservatives from their product, so have been issued a new NDC number by the FDA. The number is 0009001103.
This NDC number change has apparently made it difficult for pharmacies to find the product in their computer systems, with the result of their informing some adrenal insufficient patients that it is no longer available for prescription.
We have created this form [PDF] to inform you and your pharmacy that the product is still available for prescription.
If your pharmacy is having trouble obtaining these products, please instruct them to call Pfizer’s Customer Service at 1(800) 533-4535.
Other possible contact numbers for Pfizer are 1(800) 438-1985 or patient services at 1(888) 691-6813.
Please feel free to make copies of this notice and pass it on to your pharmacy/s. Maybe it will help you avoid the misunderstanding and resulting aggravation some other people have experienced.