The National Adrenal Diseases Foundation informs, educates, and supports those with adrenal disease and their families to improve their quality of life.

We have a fundraiser walk on June 7th at 11am at the
Williamson Town Park in Williamson, NY.

walkathon-iconCome find out what only 1 in 100,000 people live with each day. Help raise awareness to this rare disease. Remember sickness isn’t always visible, someone that you come in contact with today may be suffering from this life threatening disease.

Come and walk to raise awareness about Addison’s disease. There will be a 50/50 raffle as well as a silent auction. There is no cost for the walk so come and enjoy! There will be concessions available for purchase, proceeds will be going to the NADF.

To donate please select the donation button below.




To join the walk, visit the Facebook page: Addison’s Awareness Walk

The National Adrenal Diseases Foundation is a 501(c)(3) non-profit organization (#11-2777036)
505 Northern Boulevard, Great Neck, NY 11021 USA

Clinical trial for adrenal patients

ClinicalTrials.gov has trials that are related to the adrenals. We have listed them on a separate page in our Articles & Research section. Go here for the Clinical trial for adrenal patients page.

New Surgery Protocol for Adults

Dr. Paul Margulies’ surgery protocol for Adult Adrenal Insufficient Patients has been updated and you can get this here. Or, visit the Tools for Life page.

NADF will Participate in the Autoimmune Research Network (ARNet)

NADF will participate in the Autoimmune Research Network, ARNet, a network of autoimmune disease advocacy organizations that will foster research into autoimmune, adrenal diseases, and related autoimmune conditions. The first goal of ARNet will be to reduce the time it takes to diagnose these diseases.
Click here for details.

The Face of Addison’s Disease

This is an awareness video published by LWA Support Group on YouTube. We need your help to make sure that nobody else dies unnecessarily..
Click here to view this video

Adrenal Diseases Survey

NADF humbly requests that all physicians and healthcare professionals take 5-10 minutes out of their busy schedules to take an important survey.

We have teamed up with Opinion Health, a healthcare research agency based in London, UK, to conduct a survey on adrenal diseases, with an emphasis on adrenal insufficiency, for North America. This survey is designed to better understand current diagnosis and management of adrenal insufficiency. The results will be used to raise disease awareness and improve patient “quality of life”. Our work must be led and informed by the experiences and expert views of North American healthcare professionals.

This study is conducted in accordance with all relevant codes of conduct regarding anonymity, confidentiality, and ethical practice. It is also fully compliant with the Data Protection Act. Any information you disclose will be treated in the strictest confidence and the results are pooled so no answers are attributable to any individual. You have the right to withdraw from the survey at any time during the interview process and to withhold information as you see fit.
Click here to go to survey

American Autoimmune Related Diseases Association (AARDA) Survey

This Affordable Care Act survey was developed by AARDA.
Click here to go to survey

NOTICE

Pfizer, the manufacturer of Solu-Cortef®, in the convenient “acto-vials”, has removed the preservatives from their product, so have been issued a new NDC number by the FDA. The number is 0009001103.

This NDC number change has apparently made it difficult for pharmacies to find the product in their computer systems, with the result of their informing some adrenal insufficient patients that it is no longer available for prescription.

We have created this form [PDF] to inform you and your pharmacy that the product is still available for prescription.

If your pharmacy is having trouble obtaining these products, please instruct them to call Pfizer’s Customer Service at 1(800) 533-4535.

Other possible contact numbers for Pfizer are 1(800) 438-1985 or patient services at 1(888) 691-6813.

Please feel free to make copies of this notice and pass it on to your pharmacy/s. Maybe it will help you avoid the misunderstanding and resulting aggravation some other people have experienced.

Vital

Potentially Life-Preserving
Information Packet for Adrenal Insufficient
Patients (including
Addison’s disease)
please download.

click for zip file

click for self-extracting file

(self-extracting file is for PC computers that do not have a zip program.
All you have to do is
double-click on the file
you download to open)

Vital

Potentially Life-Preserving
Information Packet for
Congenital Adrenal
Hyperplasia (CAH) Patients
please download.

click for zip file

click for self-extracting file

(self-extracting file is for PC computers that do not have a zip program.
All you have to do is
double-click on the file
you download to open)