The National Adrenal Diseases Foundation and Backpack Health announced a partnership offering the adrenal disease community Backpack’s health data management platform, allowing for full access and control of health information for patients and, with patient consent, collection of adrenal disease-specific patient-reported data. The mobile tool enables patients to store personal health records securely, with the ability to translate, share and transport all data on any device. Backpack Health, a free app, offers people with adrenal diseases and their families an easy and secure way to manage their healthcare records. The app was designed specifically for those living with complex, rare, and chronic conditions.
Features of Backpack Health include:
Features of Backpack Health include:
- Patient and Caregiver Support: Users can add information and invite others to co-manage profiles and collaborate using the app to stay on top of care decisions.
- Health Tracking and Multimedia Data Storage: Users can monitor and record vital health information, using images, videos, and audio files to track changes over time.
- Health Share Cards: The app offers a tool that allows patients and caregivers to excerpt selected health details to be securely shared via pdf, text, or email, for example, with a new doctor, school nurse, or other family member.
- To access the app and subscribe, visit http://join.backpackhealth.com/nadf on a desktop or mobile device. After that, the app can be downloaded to any smartphone.
