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About
N A D F
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National Adrenal Diseases Foundation
Contact N A D F
National Adrenal Diseases Foundation
505 Northern Boulevard
Great Neck, NY 11021 U S A |
email NADF |
| Telephone: 516.487.4992 |
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Join N A D F
Help our efforts to fight Adrenal Diseases!
Use our mail-in Membership Form to Join
N A D F or Make A Donation
Benefits of Membership include our quarterly Newsletter
- NADF News
NADF News features:
? Current Information about Adrenal Diseases
? Q & A from NADF Medical
Director Dr. Paul Margulies MD, FACP, FACE
? Individual members share experiences and symptoms in the Member's Corner
? Membership is $25.00 per year minimum donation
To become a member, mail our Membership Form with
your check
Other ways to contribute
Our Fundraising Page
provides information on how to contribute directly,
or how to contribute indirectly without spending a dime!
Your donations & membership contributions ARE tax
deductible.
NADF is a registered 501(c)(03) public charity EIN# 11-2777036
Background
The National Addison's Disease Foundation was formed in 1985 by a young couple as a result
of their experiences with Addison's disease. At that time, there was no organization established
which would provide guidance and information about what life was like living with adrenal
insufficiency. There was no way to contact others who shared this illness. Although Addison's
disease is considered a rare disease, it is estimated that at least 10,000 individuals in the United
States have this condition (this is probably an underestimation).
Incorporated in New York State in 1985, the name was later changed to National Adrenal
Diseases Foundation to include individuals suffering from related diseases, such as Cushing's
Syndrome and Congenital Adrenal Hyperplasia. Support groups began forming in New Jersey,
New York, Connecticut, Illinois and now include groups in Arizona, California, Idaho, Iowa,
Colorado, Florida, Georgia, Kansas, Kentucky, Maine, Michigan, Nevada, Ohio, Oklahoma,
Texas, Virginia, Washington State and Wisconsin. As a result of the dedication of the board of
directors, officers and members of NADF, Addisonians now have a resource for their physical
and mental health questions. The newly diagnosed can look to NADF for information from one
of its "Facts You Need To Know" pamphlets. Anyone wishing to correspond with a fellow
Addisonian or find understanding through participation in a support group need look no further
than NADF. Even endocrinologists can stay informed through the efforts of the foundation.
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Our Mission
The National Adrenal Diseases Foundation is a 501(c)(3) non-profit organization dedicated to
providing support, information and education to individuals having Addison's disease as well as
other diseases of the adrenal glands.
Individuals suffering from Addison's disease are often misdiagnosed or go for long painful
periods without proper diagnosis. Symptoms of this disease frequently and most dramatically
include a darkening of the skin that may look like an inappropriate tan on a person who feels quite
ill with the vague symptoms of worsening fatigue, loss of appetite and slow, gradual weight loss.
Blood pressure is low and falls further upon standing, producing lightheadedness, sometimes to
the point of fainting, and nausea, often to the point of vomiting. Because of salt loss, a craving for
salt in any shape or form is common.
Individuals with Addison's disease or another disease of the adrenal glands can expect to live a
normal life span as long as the proper medical care is received and the correct dose of replacement
medication is taken every day.
NADF is committed to bringing information regarding these rare diseases into the public's awareness
to facilitate early diagnosis and treatment. NADF sponsors support groups across the country
allowing for an exchange of ideas and feelings by individuals who share a common illness.
NADF members receive quarterly newsletters, educational materials, and access to a library of
related information. NADF does not receive funding from the U.S. Government.
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NADF is committed to bringing information regarding these rare diseases into
the public's awareness to facilitate early diagnosis and treatment. |
|
|
NADF sponsors support groups across the country allowing for an exchange of
ideas and feelings by individuals who share a common illness. |
|
|
NADF members
receive quarterly newsletters, educational materials, and access to a
library of related information. |
Individuals with Addison's disease or another
disease of the adrenal glands can expect to live a crisis-free life as long as
the proper medical care is received and the correct dose of replacement
medication is taken every day.
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The newly diagnosed can look to NADF for information from our
"Facts You Need To Know" and other pamphlets. |
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Anyone wishing to correspond with a fellow addisonian or find understanding
through participation in a support group need look no further than NADF. |
NADF Board & Medical Advisors
Kalina Warren, President
Timothy Skodon, Treasurer
Erin A. Foley-Moudry, MPH
Wendy Bingaman
Gavin Christensen
Holly Jagger
Michael Lipschutz
Susan Milliken
Elizabeth Farrell
Paul Margulies, M.D., FACP, FACE—Medical Director
Phyllis Speiser, M.D.—Medical Advisor
Melanie G. Wong—Executive Director
Edward A. Wong—Executive Director’s Asst.
NADF Volunteers
Support Group Coordinator: Jan Judge
Public Policy Director/Secretarial Help: Kalina Warren
Pharmaceutical Company Liaison: Les Sass
Publicist: Ellen Whelan
Sales Coordinator: Anna Rea
Bracelet Artisan: Breanne Haeger
Health Insurance Information: Joyce Ellzey-Morgan
Grant Application Author: Harry Fox
NADF Website: Edward W. Wong
This page is dedicated by Mr. & Mrs. Thomas J. Foley in honor of the
marriage of their daughter, Erin Ann Foley, to David Michael Moudry on November 16th,
2002.
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