 Links - USA -
Other Adrenal Disease Groups & Resources
The links on this page will take you to those web sites.
The first group of contacts are general topic organizations.
The following groups are alphabetic by type of disease.
Thank you for visiting the National Adrenal Diseases Foundation!
Adrenal Cancer
www.adrenalcancer.net
Adrenal Cancer Support
Thousand Oaks, California
www.adrenalcancersupport.org
ATAC Research Fund
Advancing Treatments for Adrenocortical Carcinoma
c/o TGen Foundation
www.adrenalcancer.org
American Autoimmune Related Diseases Association, Inc. (AARDA)
Eastpointe Michigan
www.aarda.org
American Thyroid Association
1-800-THYROID
www.thyroid.org/patients/
APS Type 1
(APS Type 1) Autoimmune Polyglandular Syndrome Type 1, also known as
(APECED) Autoimmune polyendocrinopathy-candidiasis-ectodermal dystrophy.
www.APStype1.org
CARES Foundation, Inc.
Congenital Adrenal Hyperplasia support
Millburn, New Jersey
www.caresfoundation.org
Cushing’s Support and Research Foundation
Boston, Massachusetts
www.csrf.net
4 Philip dot Org 
Education and training about Addison's and adrenal diseases to doctors and caregivers both who do and do not specialize in endocrinology
www.4philip.org
Hyperaldosteronism · Conn's Syndrome and related problems
Yahoo! Group overseen by CE Grim MD, a retired physician of Milwaukee WI, who worked with Dr. Conn of Conn’s Syndrome fame.
http://health.groups.yahoo.com/group/hyperaldosteronism/
LivingSenior 
Over 75,000 care providers with reviews, photos, videos, details amenities and more
www.LivingSenior.com
MAGIC Foundation for Children's Growth
Supporting Children with Rare Diseases
Oak Park Illinois
www.magicfoundation.org
Med Help International
Information and professional medical support
Library & Specialty Medical Forums
www.medhelp.org
National Organization for Rare Disorders (NORD) 
Danbury, Connecticut
www.rarediseases.org
Pheo Para Troopers
A patient-run group for people living with pheochromocytoma and paraganglioma.
Kokomo, Indiana
www.pheoparatroopers.org
Pituitary Disorders Education & Support - PDES
Brighton , Michigan
http://pituitarydisorder.net/
Pituitary Network Association
Thousand Oaks, California
www.pituitary.org
Polyglandular Autoimmune Syndrome Type 2
Addison's
Disease & Type 1 Diabetes Addison's Disease - Diabetes Forum
Premature Ovarian Failure Support Group
Alexandria, Virginia
www.pofsupport.org
The Adrenoleukodystrophy Foundation
Slidell, Louisiana
www.aldfoundation.org
The Multidisciplinary Adrenal Cancer Clinic
UM Comprehensive Cancer Center
www.cancer.med.umich.edu/cancertreat/endocrine/adrenal_cancer
The NIH Online Mendelian Inheritance in Man (OMIN)
provides an excellent summary of all known genetic diseases with literature
citations.
Online Mendelian Inheritance in Man
Thyroid Foundation of America
Boston, Massachusetts
www.tsh.org
US Department of Health and Human Services
The Agency for Healthcare Research and
Quality (AHRQ)
Lead Federal agency charged with improving the quality, safety, efficiency,
and effectiveness of health care for all Americans.
www.ahrq.gov
US National Institute of Health - Library of Medicine
www.nlm.nih.gov
US National Institute of Health - Office of Rare Disorders
Bethesda, Maryland
http://rarediseases.info.nih.gov
VHL (von Hippel-Lindau) Family Alliance
Boston, Massachusetts
www.vhl.org
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