USA – Other Adrenal Disease Groups & Resources

The links on this page will take you to those web sites.
The first group of contacts are general topic organizations.
The following groups are alphabetic by type of disease.
Thank you for visiting the National Adrenal Diseases Foundation!

Adrenal Cancer
www.adrenalcancer.net

Adrenal Cancer Support
Thousand Oaks, California
www.adrenalcancersupport.org

ALD Connect
For individuals with X-linked adrenoleukodystrophy (ALD)
aldconnect.org

ATAC Research Fund
Advancing Treatments for Adrenocortical Carcinoma
c/o TGen Foundation
www.adrenalcancer.org

American Autoimmune Related Diseases Association, Inc. (AARDA)
Eastpointe Michigan
www.aarda.org

American Thyroid Association
1-800-THYROID
www.thyroid.org/patients/

APS Type 1
(APS Type 1) Autoimmune Polyglandular Syndrome Type 1, also known as
(APECED) Autoimmune polyendocrinopathy-candidiasis-ectodermal dystrophy.
www.APStype1.org

CARES Foundation, Inc.
Congenital Adrenal Hyperplasia support
Millburn, New Jersey
www.caresfoundation.org

Center for Adrenal Disorders at Brigham and Women’s Hospital
Center for Adrenal Disorders

CenterWatch
http://www.centerwatch.com/

Cushing’s Support and Research Foundation
Boston, Massachusetts
www.csrf.net

4 Philip dot Org
Education and training about Addison’s and adrenal diseases to doctors and
caregivers both who do and do not specialize in endocrinology
www.4philip.org

Hyperaldosteronism · Conn’s Syndrome and related problems
Yahoo! Group overseen by CE Grim MD, a retired physician of Milwaukee WI,
who worked with Dr. Conn of Conn’s Syndrome fame.
http://health.groups.yahoo.com/group/hyperaldosteronism/

LivingSenior
Over 75,000 care providers with reviews, photos, videos, details amenities and more
www.LivingSenior.com

MAGIC Foundation for Children’s Growth
Supporting Children with Rare Diseases
Oak Park Illinois
www.magicfoundation.org
MAGIC Foundation Facebook pages:
For parents of Cushing’s children, https://www.facebook.com/groups/Cushings.Parents.MAGIC/
For adults with Cushing’s, https://www.facebook.com/groups/CUSHINGS.adult.MAGIC/

Med Help International
Information and professional medical support
Library & Specialty Medical Forums
www.medhelp.org

National Organization for Rare Disorders (NORD)
Danbury, Connecticut
rarediseases.org

Pheo Para Troopers
A patient-run group for people living with pheochromocytoma and paraganglioma.
Kokomo, Indiana
www.pheoparatroopers.org

Pituitary Disorders Education & Support – PDES
Brighton , Michigan
http://pituitarydisorder.net/

Pituitary Network Association
Thousand Oaks, California
www.pituitary.org

Polyglandular Autoimmune Syndrome Type 2
Addison’s Disease & Type 1 Diabetes        Addison’s Disease – Diabetes Forum

Premature Ovarian Failure Support Group
Alexandria, Virginia
www.pofsupport.org

The Adrenoleukodystrophy Foundation
Slidell, Louisiana
www.aldfoundation.org

The Multidisciplinary Adrenal Cancer Clinic
UM Comprehensive Cancer Center
http://www.mcancer.org/adrenal-cancer

The NIH Online Mendelian Inheritance in Man (OMIN)
provides an excellent summary of all known genetic diseases with literature citations.
Online Mendelian Inheritance in Man

Thyroid Foundation of America
Boston, Massachusetts
www.tsh.org

US Department of Health and Human Services
The Agency for Healthcare Research and Quality (AHRQ)
Lead Federal agency charged with improving the quality, safety, efficiency,
and effectiveness of health care for all Americans.
www.ahrq.gov

US National Institute of Health – Library of Medicine
www.nlm.nih.gov

US National Institute of Health – Office of Rare Disorders
Bethesda, Maryland
http://rarediseases.info.nih.gov

VHL (von Hippel-Lindau) Alliance
Boston, Massachusetts
www.vhl.org