The links on this page will take you to those web sites.
The first group of contacts are general topic organizations.
The following groups are alphabetic by type of disease.
Thank you for visiting the National Adrenal Diseases Foundation!
Adrenal Cancer Support
Thousand Oaks, California
For individuals with X-linked adrenoleukodystrophy (ALD)
ATAC Research Fund
Advancing Treatments for Adrenocortical Carcinoma
c/o TGen Foundation
American Autoimmune Related Diseases Association, Inc. (AARDA)
American Thyroid Association
APS Type 1
(APS Type 1) Autoimmune Polyglandular Syndrome Type 1, also known as
(APECED) Autoimmune polyendocrinopathy-candidiasis-ectodermal dystrophy.
CARES Foundation, Inc.
Congenital Adrenal Hyperplasia support
Millburn, New Jersey
Center for Adrenal Disorders at Brigham and Women’s Hospital
Center for Adrenal Disorders
Cushing’s Support and Research Foundation
4 Philip dot Org
Education and training about Addison’s and adrenal diseases to doctors and
caregivers both who do and do not specialize in endocrinology
Hyperaldosteronism · Conn’s Syndrome and related problems
Yahoo! Group overseen by CE Grim MD, a retired physician of Milwaukee WI,
who worked with Dr. Conn of Conn’s Syndrome fame.
Over 75,000 care providers with reviews, photos, videos, details amenities and more
MAGIC Foundation for Children’s Growth
Supporting Children with Rare Diseases
Oak Park Illinois
MAGIC Foundation Facebook pages:
For parents of Cushing’s children, https://www.facebook.com/groups/Cushings.Parents.MAGIC/
For adults with Cushing’s, https://www.facebook.com/groups/CUSHINGS.adult.MAGIC/
Med Help International
Information and professional medical support
Library & Specialty Medical Forums
National Organization for Rare Disorders (NORD)
Pheo Para Troopers
A patient-run group for people living with pheochromocytoma and paraganglioma.
Pituitary Disorders Education & Support – PDES
Brighton , Michigan
Pituitary Network Association
Thousand Oaks, California
The Adrenoleukodystrophy Foundation
The Multidisciplinary Adrenal Cancer Clinic
UM Comprehensive Cancer Center
The NIH Online Mendelian Inheritance in Man (OMIN)
provides an excellent summary of all known genetic diseases with literature citations.
Online Mendelian Inheritance in Man
Thyroid Foundation of America
US Department of Health and Human Services
The Agency for Healthcare Research and Quality (AHRQ)
Lead Federal agency charged with improving the quality, safety, efficiency,
and effectiveness of health care for all Americans.
US National Institute of Health – Library of Medicine
US National Institute of Health – Office of Rare Disorders
VHL (von Hippel-Lindau) Alliance