USA – Other Adrenal Disease Groups & Resources

The links on this page will take you to those web sites.
The first group of contacts are general topic organizations.
The following groups are alphabetic by type of disease.
Thank you for visiting the National Adrenal Diseases Foundation!

Adrenal Cancer Support
Thousand Oaks, California

ALD Connect
For individuals with X-linked adrenoleukodystrophy (ALD)

ATAC Research Fund
Advancing Treatments for Adrenocortical Carcinoma
c/o TGen Foundation

American Autoimmune Related Diseases Association, Inc. (AARDA)
Eastpointe Michigan

American Thyroid Association

APS Type 1
(APS Type 1) Autoimmune Polyglandular Syndrome Type 1, also known as
(APECED) Autoimmune polyendocrinopathy-candidiasis-ectodermal dystrophy.

CARES Foundation, Inc.
Congenital Adrenal Hyperplasia support
Millburn, New Jersey

Center for Adrenal Disorders at Brigham and Women’s Hospital
Center for Adrenal Disorders


Cushing’s Support and Research Foundation
Boston, Massachusetts

4 Philip dot Org
Education and training about Addison’s and adrenal diseases to doctors and
caregivers both who do and do not specialize in endocrinology

Hyperaldosteronism · Conn’s Syndrome and related problems
Yahoo! Group overseen by CE Grim MD, a retired physician of Milwaukee WI,
who worked with Dr. Conn of Conn’s Syndrome fame.

Over 75,000 care providers with reviews, photos, videos, details amenities and more

MAGIC Foundation for Children’s Growth
Supporting Children with Rare Diseases
Oak Park Illinois
MAGIC Foundation Facebook pages:
For parents of Cushing’s children,
For adults with Cushing’s,

Med Help International
Information and professional medical support
Library & Specialty Medical Forums

National Organization for Rare Disorders (NORD)
Danbury, Connecticut

Pheo Para Troopers
A patient-run group for people living with pheochromocytoma and paraganglioma.
Kokomo, Indiana

Pituitary Disorders Education & Support – PDES
Brighton , Michigan

Pituitary Network Association
Thousand Oaks, California

Polyglandular Autoimmune Syndrome Type 2
Addison’s Disease & Type 1 Diabetes        Addison’s Disease – Diabetes Forum

The Adrenoleukodystrophy Foundation
Slidell, Louisiana

The EPIC Foundation
The EPIC foundation provides support, advocacy, education and tools to people who are affected by chronic illness.

The Multidisciplinary Adrenal Cancer Clinic
UM Comprehensive Cancer Center

The NIH Online Mendelian Inheritance in Man (OMIN)
provides an excellent summary of all known genetic diseases with literature citations.
Online Mendelian Inheritance in Man

Thyroid Foundation of America
Boston, Massachusetts

US Department of Health and Human Services
The Agency for Healthcare Research and Quality (AHRQ)
Lead Federal agency charged with improving the quality, safety, efficiency,
and effectiveness of health care for all Americans.

US National Institute of Health – Library of Medicine

US National Institute of Health – Office of Rare Disorders
Bethesda, Maryland

VHL (von Hippel-Lindau) Alliance
Boston, Massachusetts