NADF has placed the Question and Answer section of their Newsletter "NADF News" for the years 2004 to Present in a search engine for easy reference. Click here to reference this feature:
Dr. Margulies' Flu Vaccinations Recommendation Influenza season is coming fast upon us, and NADF Medical Director Paul Margulies, MD, FACE, FACP recommends that all adrenal insufficient patients (Addison’s disease, 2ndary adrenal insufficiency, congenital adrenal hyperplasia, adrenomyeloneuropathy, et al.) get both the H1N1 (a.k.a. Swine Flu) vaccination when it is available (in early October, is being reported), as well as their regular yearly flu vaccination.
April 2010
Boston Marathon Fundraiser for NADF.
Jay Ross ran in the Boston Marathon on April 19, 2010 in memory of his sister, Jill Marie Ross. Proceeds from the fundraiser were donated to NADF. This flyer tells the story of his sister's death due to ignorance of Addisons disease by a prescribing physician.
The Hair Cortisol study announced here last July has come to an end. The study was done by Dr. Stan Van Uum in London Ontario Canada. Dr. Uum sends his thanks to those that contributed to the study. They received queries from almost 200 interested patients and more than 100 participated from all across North America. They are now analyzing the data and the results should be out shortly.
Other Fundraising Projects
Buy Mary Kay, Support the NADF
The NADF is partnering with Terri Pollard, a Mary Kay sales consultant for a great new fundraiser! She has generously agreed to donate 50% of retail profits (minus shipping and handling) of any order to the NADF. You can purchase merchandise from her website, www.marykay.com/terripollard. Just be sure to mention the NADF when you place your order. Thank you Terri!
Contact NADF
with suggestions or contributions for articles or content
Janell, or “Nellie” as we all called her, completed our family when she was born June 19, 1964, the baby of the family. Please click here for the full tribute.
Complications from the Addison’s Disease, along with other underlying conditions, took her from us on August 28, 2011, at the young age of 47 years.
NOTICE
Pfizer, the manufacturer of Solu-Cortef®, in the convenient "acto-vials", has removed the preservatives from their product, so have been issued a new NDC number by the FDA. The number is 0009001103.
This NDC number change has apparently made it difficult for pharmacies to find the product in their computer systems, with the result of their informing some adrenal insufficient patients that it is no longer available for prescription.
We have created this form [PDF] to inform you and your pharmacy that the product is still available for prescription.
If your pharmacy is having trouble obtaining these products, please instruct them to call Pfizer's Customer Service at 1(800) 533-4535.
Other possible contact numbers for Pfizer are 1(800) 821-7000 or patient services at 1(888) 691-6813.
Please feel free to make copies of this notice and pass it on to your pharmacy/s. Maybe it will help you avoid the misunderstanding and resulting aggravation some other people have experienced.
1st annual Fun Walk to benefit the KYRA Foundation
Thank you for your generous donations to the Christie M. Williams Race for Awareness. Together we raised over $8,000! See the race results here.
Jamie Williams' 2010 Wine and Chocolate Fundraiser in Honor and Memory of her Dear Sister Christie
With over 100 in attendance, which included such notaries as retired San Francisco 49er Wide Receiver Dwight Clark, and silent auction items such as a signed picture, CD and harmonica from Huey Lewis, a signed football from Dwight Clark, volleyball signed by Kerri Walsh (Olympics winner), a hockey stick signed by members of the 2009-2010 Sharks team, and a jersey signed by the 2008/2009 Sharks team, Jamie Williams’ Wine & Chocolate Fundraiser was a great success, raising an astounding $6,235.03 for NADF and adrenal patients!
Jamie hopes "to see everyone out there next year…whatever event I end up putting together. And thank you for celebrating Christie and helping her memory live on."
In memory of
Christie Marie Williams
Christie, at the age of 23, passed away on March 3, 2009 in her San Jose home. Her death was related to Addison’s Disease, which she was diagnosed with last June.
The family is asking, in lieu of flowers, that donations be made in her name to the National Adrenal Disease Foundation.Read the Euology.
Donate to the NADF in her memory
The NADF thanks you in advance for your generous donation in Christie's memory. Offline Donation Coupon
This Mizvah project gives all profits to NADF. You can purchase a pillow by check, credit card or Pay Pal. See http://www.pillowsbysarah.com for more information.
NADF does not engage in the practice of medicine. It is not a medical authority, nor does it claim to have medical knowledge. In all cases, NADF recommends that you consult your own physician regarding any course of treatment or medication.
Click on this link to Donate to NADF
November 2010
