The National Addison’s Disease Foundation was formed in 1985 by a young couple as a result of their experiences with Addison’s disease. At that time, there was no organization established which would provide guidance and information about what life was like living with adrenal insufficiency. There was no way to contact others who shared this illness. Although Addison’s disease is considered a rare disease, it is estimated that at least 10,000 individuals in the United States have this condition (this is probably an underestimation). Incorporated in New York State in 1985, the name was later changed to National Adrenal Diseases Foundation to include individuals suffering from related diseases, such as Cushing’s Syndrome and Congenital Adrenal Hyperplasia. Support groups began forming in New Jersey, New York, Connecticut, Illinois and now include groups in Arizona, California, Idaho, Iowa, Colorado, Florida, Georgia, Kansas, Kentucky, Maine, Michigan, Nevada, Ohio, Oklahoma, Texas, Virginia, Washington State and Wisconsin.
As a result of the dedication of the board of directors, officers and members of NADF, Addisonians now have a resource for their physical and mental health questions. The newly diagnosed can look to NADF for information from one of its “Facts You Need To Know” pamphlets. Anyone wishing to correspond with a fellow Addisonian or find understanding through participation in a support group need look no further than NADF. Even endocrinologists can stay informed through the efforts of the foundation.
The National Adrenal Diseases Foundation informs, educates, and supports those with adrenal disease and their families to improve their quality of life.
- To stop death from undiagnosed Addison’s disease.
- To improve life quality of those who suffer from adrenal disease.
- To promote the study of adrenal disease to improve treatment and find cures
NADF Board & Medical Advisors
Kalina Warren, President
Timothy Skodon, Treasurer
Elizabeth Farrell Secretary
Erin A. Foley-Moudry, MPH
Lisa Martin, MSN, MA, RN-BC, LHRM, CPAN
Paul Margulies, M.D., FACP, FACE—Medical Director
Phyllis Speiser, M.D.—Medical Advisor
Melanie G. Wong—Executive Director
Edward A. Wong—Executive Director’s Assistant
Mike Shutt, MFT: NADF Counselor
Jan Judge: Support Group Coordinator
Lisa Markland, MSW: Medical Information Publication Copy Editor
Ellen Whelan: Publicist
Suzanne Bugbee: Pharmaceutical Company Liaison
Edward W. Wong: NADF Website
This page is dedicated by Mr. & Mrs. Thomas J. Foley in honor of the marriage of
their daughter, Erin Ann Foley, to David Michael Moudry on November 16th, 2002.